Showing posts with label oedema. Show all posts
Showing posts with label oedema. Show all posts

Thursday, February 18, 2010

Oedema update

The Lymphoedema therapist has been for my first appointment. Because lymphoedema is often related to the treatment of cancer, she is a Macmillan therapist and so gave me a leaflet from the MacMillan Trust. After taking my medical history, she decided that the best guess is that I have a poorly developed or sluggish lymph system. It is rare but not unknown. And over the years, I have had a few different infections etc that indicate my lymph system might not be the best. Certainly there is scarring. It coped for a long while. But some trauma happened and it is out of balance.
Treatment for oedema is therapy led because really there is no magic tablet. It is a combo of things to try and put my system back into some sort of balance.
First up -- I have to moisturise and attempt to keep my skin soft. The biggest problem for oedema sufferers is infection. There is excessive fluid and celluitus is far more common. If I get an infection, it is 2 weeks of antibiotics.This means wearing gloves when I am washing up, gardening or doing general housework. Making sure that I wear insect repellent and sun cream. I need to avoid getting burnt and insect bites. Animal bites are of severe concern...Anything really that can trigger an infection.
I am also supposed to avoid carrying heavy bags with that arm...
I have been shown two simple exercises that I have to do after every 30 minutes of writing time to exercise my forearm. And I need rest my arm on the arm of a chair when watching tv.
The next time I see her, she will give me a whole series of exercises.
I need to lose weight as I am too heavy for my lymph system. And the weight loss will take the strain off the system. It is a factor, not a cause.
I get to do a Michael Jackson impersonation as she is ordering a compression sleeve and glove for me to wear. The idea is to get the oedema under control quickly and so we are using a number of different tools.
Anyway, it is going to be an on going thing and I am going to need to make lifestyle changes...
And did I say how much I love the NHS (even with all its problems!)?